The doctors confirmed that he has something called Craniosynostosis, which is where one or more of the joints between a baby's skull bones close before they are supposed to, resulting in a misshapen appearance because the brain is still growing. Jackson has this in two places.
We were given two different surgery options and a very short time frame to decide. The surgery we opted for is not traditional, but is minimally invasive and poses a smaller risk than the other more major surgery. It will however require long-term follow up care; they will be removing a piece of bone and for several months he will be wearing a helmet to help guide his skull so that it continues to grow properly. This week we have a CT scan and meeting with doctor, and surgery is next week.
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