Wednesday, April 26, 2017

Update

In a previous post I mentioned some concerns that the pediatrician alerted us to about the shape of Jackson's head. Last week we met with neuro and craniofacial surgeons to learn more.

The doctors confirmed that he has something called Craniosynostosis, which is where one or more of the joints between a baby's skull bones close before they are supposed to, resulting in a misshapen appearance because the brain is still growing. Jackson has this in two places.

We were given two different surgery options and a very short time frame to decide. The surgery we opted for is not traditional, but is minimally invasive and poses a smaller risk than the other more major surgery. It will however require long-term follow up care; they will be removing a piece of bone and for several months he will be wearing a helmet to help guide his skull so that it continues to grow properly. This week we have a CT scan and meeting with doctor, and surgery is next week.

If praying is something you do, please remember us. Happy thoughts and positive vibes are also appreciated.





4 comments:

  1. Oh you guys, that's so hard! Poor little Jack. Babies are surprisingly tough. How are you handling all this? I'm praying for you all.

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  2. Gosh, I'm so sorry the news wasn't great! That's so tough. You guys are definitely in my prayers, keep us posted!

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  3. Oh my goodness. I promise I will be praying for all of you! The good news is, he'll remember none of this, though you will. It will all be ok!

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  4. Thoughts and prayers for peace. I feel like this is so common...the doctors know what they're doing.

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